Part IV - A VISIT WITH MY NEUROLOGIST

JANUARY 11TH

Going to see Dr. Kuzniecky with my parents and his team of epileptic scientists and nurses at 4p.m., I walked in and out with a face of happiness and laughter, not sorrow and depression!

This was a great surprise to see, by my doctor, that an oil along with all other meds was finally working in my favor. I offered him my bottle of CW OIL which he accepted thankfully, being that he hadn’t had one or seen it in hand; the bottle was close to finished, possibly only a few days left, so to study the oil in the bottle seemed smarter rather than an empty glass bottle, plus I had another waiting for me back home.

Be that at it is, my mother, father, Michelle (on the phone, working as usual) and I, all gave him the same story of a much healthier and much more loving person than ever before. “I love my momma, I can’t go a day without kissing her hello and goodbye”. My mother said the same, sort of “Bruno is like a totally different person now”!

My mother, always the Mother of a Million questions, was speechless. We were just waiting to see what Dr. Kuzniecky had to say, what did Kuzniecky have up his sleeve to share this time, which in the years past given the question “So what’s next?” (medication wise). Not this time. This time I wanted to ask “So how soon until I can start running track & field again Doc, or my laps up and down the Hudson River?” (Too much too soon). Instead he requested and Ambulatory EEG for a day in April. An AEEG for those who are not familiar, is an EEG just like any other, but to be worn for a day to show your results in your daily lifestyle, while strapping a bag to your waist for the device to work. Then the information is delivered back to your neurologist for further review the very next day.  

Pictured above is my greatest Neurologist, Dr. Ruben Kuzniecky from the NYU Epilepsy Center in NYC.

The one and only thing that was not changed in my life was my napping epidemic. On an average day, my napping pattern is an afternoon 2p.m. hour and a half rest, two at most, anything longer affects me, plus I’m not planning on sleeping my day away, no matter how crazy the situation may be. Dr. Kuzniecky always has the best and obvious advice, a quick one two punch! To take an extra amount of oil, just one more afternoon drop of your normal amount and let’s see how that does, because apparently, its working for everything else. And it does indeed! From that day on my naps were not so dreaded, but rather accepted in my life’s personal issues. No more waking up dazed and concerned in my Epileptic Netherworld of what was to come.

As it went on I could see how they were all dumbfounded, but I was not! Nor was Michelle. Her and I could see all the major differences that were finally happening, but some could not. Or just couldn’t conclude on what they always wanted to happen was finally happening. And many people can’t, even those you know. And for myself, it seemed like something that was pulled out of a Tim Burton movie. I could see my life being pulled into different directions, the right directions, and everything was moving in slow motion. All on my behalf from a now 36 soon to be 37yr old who’s life has been upside down and spinning all around since I was ten, and from birth!

On a side note - a little back story about myself - as we all hope to God know already, being yanked out of your mother’s womb with a pair of metal forceps on an infant’s delicate not to be touched head is trouble waiting to happen!!

PART I - CHARLOTTE’S WEB EVERYDAY ADVANCED HEMP OIL

Learn more about ordering this product Here.

Back in August 2015, when Josh Stanley, one of the two Stanley Brothers of Colorado, along with Joel, the inventors of the CW OIL, said to us, Michelle and I, that he needed an adult with epileptic issues and yet can talk to to change their futures and to see the finished product and its results. Basically, he just needed a face that he could work with, simply by finding out about me through this website. Lucky for us, he was staying in New York at the time. Josh told us that he needed time, that him and his brother were making a solution for adults, and that when it was completed, that he would be getting back to us and to be keeping in touch. And soon!

Jumping ahead now to Thursday, September 29th, 2016, with a visit to see my neurologist, Dr. Kuzniecky, who always keeps us informed of future medications and experiments happening or that are in production and ready to be ordered or taken at the right time. The special Hemp oil has been brought to our attention for years now and that one day it will be available to be used in New York without any problems of getting it ordered. The only other scenario was to travel up to Colorado yourself every month, once or twice, and to buy it straight from the factory, as we were told. The product was not finished yet, so to take it as an adult could have caused problematic side affects, so ruining any chances of trying to find a way for the product to work when I knew that the day was coming as Michelle and I were told first hand by Josh Stanley himself. 

My doctor said to us himself that it may cost from up to $500 to $600 a month, not FDA approved yet, so the money would have to be paid up front on the order. Five to six hundred dollars I said no problem, if something was finally working for us epileptics, I would have considered a thousand easily. Don't ask me how, I am no richer then any other person, but to get my life back in order, and my freedom back, I had no reason to believe that if it has been working well for children lucky enough to stopping this demon from attacking us, as of old theories, Biblical stories, that something now these days has to make it end, before it ends us.

On Columbus Day, Monday of October 10th,  our same day Holiday here in America, Michelle and I logged into THE REALM OF CARING, where we were told to go by my neurologist, which is the number 1 place to be for all struggling epileptics to be if needed.

Now to find the right medication for myself, which was now ready to purchase and order for a lot less then my doctor had thought. For $275.00, free of shipping and handling and tax free, that which is on purchases over $30 within the United States. The order was purchased and went out on that Friday, October 14th from CW BOTANICALS COLORADO and in my hands that very day. There are two choices to chose from, Mint Chocolate or Olive Oil Extract flavors along with two different sizes as well, a 30ml to a 100ml in all different types, from children to adults, canine pets included. I chose the 100ml of olive oil being that its pretty obvious when you are up in age and that this amount would be the right one, but it is so unknown, so any person can not deal with precautions of bottles with less of a dosage. If chosen and taking correctly will save you money instead of over-ordering month by month.

There are obvious conditions in taking this oil, which is first an agreement by your doctor due to the medication your on already. Second is the style of which taking this oil if it is approved and appropriately following your doctors orders, which is a one time taken for the first week so that your body can recognize it, just like any other medication, coming on or off. And thirdly, the amount to be taken which drips out, a 1/8th of a teaspoon, which as well needs to be figured out by yourself, with help if needed. The way that Michelle and I figured it out to be, by our own intellect, is 3 to 4 drips of the bottle, after being well shaken, and by mouth, along with a bottle of water at hand.  

The second week, we use the same amount ordered, by your doctor and the bottles rules, twice a day, morning and night, and if all is going well for you or with any side effects caused, must be reported and informed to you doctor immediately, from day one!

Before we started week three, I had some unlikely things happen that did worry Michelle and I, do to the sudden increase in some drastic seizures that had started all over again, but I didn't falter at the task I was given, to find an everlasting cure. So I fought through my problems, as always, tried hard to keep a less worries outlook and to let the medications settle in with the CW Oil as some of my seizures started to vanish, that is besides the most important thing, the falling.

I tell you this to keep all of your hopes and dreams alive as well! The one thing that we know, my doctor mostly, is that I will never give up or give in, that I am his number One Fighter, as he knows best and the team we have working for us at NYU Langone Epilepsy Center, that I am the last person that he would ever consider a quitter! And that stands for all of you as well!
So be that as it is, I let the medications take place, blood shots every week or two, and let the CW Oil settle in with my Morning- prozac, Onfi, Dilantin. Afternoon- Onfi, Dilantin and vitamins, a multi vitamin, Turmeric (a memory brain healing vitamin) and Vitamin D-3 5000IU. At Night- Aptiom, Dilantin, Onfi, Fycompa, and now, CW Oil. The CW Oil can be taken morning, afternoon and night at separate times so that I can see for myself and yours a possible change in life due to it. All of these meds I scare myself from the amount at which each is taken, ones body, ones self, one problem, and yet still cannot be considered a cure! But when all of the meds taken are working all well together you may, in time, find the results to be, astonishing!

PART II - THE RESUTS SO FAR will continue next week. So please keep a look out for my upcoming blog post.