Bruno Fiacco

STAYING HEALTHY, THE EPILEPTIC WAY

I have been battling seizures for many years. I want to share my story and help others live better everyday.

Possibly The Greatest Day of My Life

On Monday, August 31st, the day after my website went live and on Michelle’s sister Nicole’s birthday, it turned out to be one of the Possibly Greatest Days of my life. To start Michelle and I had contacted Nicole to wish her a happy birthday much earlier in the day and I had told Nicole to check out my new yet unfinished website. It’s because of this that at night Michelle and I got a very exciting late phone call. I was in the living room on the floor reading when Michelle walks in telling me that she had Nikki, her fiancé Chris and his brother from Colorado on the phone and wanted to speak to us. I said sure, what’s up? Nikki said that she had met a guy in a bar and that he wanted to speak to us so we said okay put him on, wondering what it could be. So he started to speak, said that he had just seen and read my new website and was asking if I was interested in working on a project for epilepsy awareness. I said okay, go on. He said that he was from Colorado and that his brother had invented the Charlotte’s Web medication for children and that he needed an adult living with Epilepsy, a bad case, to work with.

Michelle and I were both excited about it, she emailed him the next day and we planned to meet him that week since he was leaving back to Colorado on Saturday. When the phone conversation had ended, we received a text message from Nicole that read, meeting him had made her day. Now I never made anyone’s day before that I can recall, told Nikki that she was the first person to of ever made their day, not to mention on their birthday! So that made my heart stop and put tears in Michelle’s eyes.

Thursday came along, it was Labor Day weekend and Michelle had a half day off from work, came home and we had spent the next few hours in the city and awaited his appearance not knowing anything about this guy. We called Nikki and she said that he was a tall, white, blonde, well-built man and around our age. Her words! He arrived with his girlfriend as excited to see us as we him and well Nikki was right about his figure. So we got right into conversation about how he met Nicole, about our families, our backgrounds and mainly about epilepsy and his ideas on fighting against it and putting it to sleep forever!

We knew about Charlotte, the first child to have her epilepsy controlled. He and his girlfriend had said that something similar may help you after all of your years of suffering. Not my neurologist but his partner at NYU was already in with him, all he needed was my doctor’s approval before he could begin, but I told him that I was sure he would be all for it after all these years of trying to find me the right combination of meds. This test although would take a month of weening me off of one of my current meds and onto this… I said fine whatever you need me to do, I’ve been through enough already as well as falling off of my own couch just before getting picked up by a cab, showing him the mark on my forehead. So he said he will need to configure a medication for someone of your size and it may take up to a month. Michelle and I said we have no problem with that, get the dosage ready and when the time is right it’s a go.

I shook his hand during and after our conversation telling him that I didn’t think anybody cared this much about us epileptics. That you don’t see anything anywhere about it and that just got all four of us even more angry! We all smiled with the new found hope that we are all sure for it being a success.

So from one website and short story and one very special birthday girl, we may have found a solution!       

My Sister-In-Law Nicole and her fiancé Chris

My Sister-In-Law Nicole and her fiancé Chris