Bruno Fiacco

STAYING HEALTHY, THE EPILEPTIC WAY

I have been battling seizures for many years. I want to share my story and help others live better everyday.

Filtering by Tag: Good Samaritans

SOMETHINGS ARE MEANT FOR A REASON, EVEN IF YOU DON’T THINK SO!

Somethings indeed are meant for a reason and should truly be thought about or over or something bad may come of it. Again nobody knows when, why, where or what, but if you are smart you will learn that somethings may need to be thought over deeply when we find ourselves down on the ground, smashed face first with which could have been the end of our days alive!

For me this all occurred on October 29th when my wife was desperately wanting to leave at 9p.m. to a pumpkin festival in Old Westbury Gardens, LI, to see The Rise of The Jack O’Lanterns. Lets cut back three weeks to October 8th, the night my brothers Michael, his wife Despina and Anthony were supposed to meet us out at the park together as a group when situations started to occur. Apparently Despina was feeling sick, Michael wasn't feeling up to it, and Michelle and Anthony were the only ones wanting to go anyway. I refused myself on going that weekend as well, or at all, but she didn't give in to her temptation to go. But then and there just before we left I asked for a protein shake to make myself, something I always ask Michelle to make for me, but on that day, at that very moment before drinking it, I plastered myself from head to toe, and it was like pouring glue on myself. My arms, hands, and jeans where locked shut, and I was confused. Although my confusion turned bad when I heard the yelling. My wife stayed in the kitchen, my parents and brothers were called over to find out what the problem was, and found me soaked and quite angry, I removed my clothes in our bedroom and found myself hysterically crying in my corner bedroom leather chair. Everyone went home that day trying to figure me out; not an easy thing to do to for an epileptic. 

And this is the Point of the story, if I had given it a better thought this may not have happened, and if I was the size of my two younger brothers, Michael or Anthony, I for sure would have been killed off many times already. My other brother Chris as well, even though we are very close in size and shape, he would not be able to control these problems the way I do, for sure. But on Saturday, October 29th, was my first fall face down - I hit my chin, jaw, nose, forehead and knees. There were families - Good Samaritans - all around making sure that I was safe, yet bleeding from my almost broken chin and jaw, battered teeth  and nose. Before I was helped up I was worried about if any children or parents had been hurt by me. No one was, but Michelle had a slight cut on her left  knee from trying to grab me from behind.

I was was helped up with one of the guards walking on my right leg and limping on my left back to get attended to by a medical technician who said himself that “All these lights here and flashing phones and cameras for pictures is a seizure waiting to happen”. Michelle and I had told him that we had been here for three years now, but this time all the lights were way brighter then in the past. 

My chin was swollen, my inner bottom lip as well, my teeth, my jawline, my right arm and left knee hurting so bad that I couldn't tell for the life of me what was possibly  A. Broken  B. Smashed in (teeth) C. A bit off tongue and lip and D. A broken leg.

All things that are possible after a seizure like this happens and I remember being asked if we wanted to go back out there. Michelle and I yelled out, “Are you Crazy”!! Well Michelle did the talking, I did the look of, ‘Can we get the hell out of here now’, rolling my eyes of remorse to her. I was rolled out of the park to our car in a wheelchair with a medic holding an oxygen tank and a mask strapped over my face to breath through.  

 I was able to get into our car, with help by the medic, and there was only one thing going off in my mind, which was, ‘Why didn't I listen to the one who was trying to keep me home that day, why was I so foolish in making such wrong decisions, when the one that was trying to keep me safe that day was God’! This was not my idea, but I agreed to for my wife, even though I was tired already, would it of been such terrible idea to say no. NO, but she already spent money from a few weeks prior, I didn’t want her to waste money again, but is money ever a waste? It was nothing other then wasting a life away on a $30 pumpkin field trip!

All in all, when starting a new medication on top of the five already that I’m on, there is no stupider idea of doing something out of the ordinary when you know that horrible things may, and will happen by not trusting yourself in understanding that for epileptics and others of conditions, fighting away death is an everyday, every hour, every minute to second war!

You mustn't let the problem you suffer from beat you, especially when it has anything to do with your brain, which no doctor will ever understand the meaning of, besides God! 

And you can trust me mostly when I tell you that the Lord is on my side, and yours, because death could have come to me in so many different ways already, but I am here today, and will be tomorrow, with ways to keep you safe and away from trouble with stupid ideas of foolish for nothing activities. And if you are wondering still if I am in one piece, face included, I can tell you absolutely Yes, but I will never do something like that ever again, so be smart about your future decisions in life because Somethings Do Happen For A Reason, Even If You Don't Think So! 

 

THE GOOD, THE BAD AND THE EPILEPTIC

On Saturday, November 14th after a late brunch in Bayside, we took a 4:28pm LIRR for 20 minutes to Penn Station and went to some places that Michelle wanted to show me like Bryant Park, which during this month and next for Christmas has about 30 to 40 booths, lots of sellers of ornaments mostly for tourists and an ice skating rink with a line of children wrapped around it. There is no Christmas tree yet there or in Rockefeller Center which made it easier to walk around without the over-crowded sidewalks and streets for a tree that is decorated the same every year. We walked around the Park and then to Lord & Taylor’s Christmas window displays under their gold lights which was beautiful.

After that Michelle knew a place that is open all year long, Christmas on 5th which is a very wide, long and Holy store with beautiful ornaments small and large as well as Nativity Scenes I do plan on purchasing, but we were short on time. Directly across the street was my favorite store - Barnes & Noble with a lot of movies and music - and vinyl’s on the second floor. I grabbed some books on the way out and onto St. Patrick’s Cathedral which had just been renovated beautifully all around, Michelle and I lit a few candles, said a few prayers and made some donations on its soon to be completion and then I noticed something on the right side of the church near the back - a Pieta’.

  A replica of Michelangelo’s who is widely regarded as the most famous artist of the Italian Renaissance. Among his works are the "David" and "Pieta" statues and the Sistine Chapel. Most of his work was done there in Rome where he passed away at the age of 88 in 1564. This one shone here though in New York is a little different and far less famous.

I purchased four prayer books in the gift shop and left. It was now 7:30 and we were off to our 8 o’clock dinner reservation at Ted’s Montana Grill, we reserved a booth because Michelle and I noticed from the past that there are only 6 booths and a reservation is necessary which I remembered and told her to call earlier. At 7:45 we were there and the booth was ready for us. After all of that walking I had not one problem from early in the day to Ted Turner’s Montana Grill when I noticed a saying from Ted Turner himself on the wall above us which reads: Do something. Either lead, follow or get out of the way. Funny, but true as well.

And then this happened on our way back home in Penn Station...

A problem which has happened 2 times before at different times and days, both in Penn Station. It was about 9:45pm and we were waiting for a 10:18pm train home that Michelle and I were trying to catch with hopes that this time, since the day had gone so well already walking around town – even though we were tired after leaving the restaurant, but not so much that we couldn’t walk back to walk off the food we had just ate.

We reached the station escalator fine, but as soon as we got on with people all around, I had a drop attack seizure and it seemed like I was up against a wall. More of a dream really; rather a nightmare. As I opened my eyes again finally I found 4 people, 2 couples - Good Samaritans - who had pulled me off of the escalator with my 200 pounds of dead weight which then felt like much more (a body soaked in water so to speak). Michelle could not have done it alone.

A woman had asked my wife, “Is he okay, he looks like he’s falling down” she grabbed her husbands’ arm across the escalator and Michelle told them I was having a seizure. I was then grabbed along by his friend/family member and they pulled off and sat me down on the ground. There were at that time people Michelle and I remember walking on by around me, they would have walked on me not caring if I was dead or not, just kicking me aside.

As I finally woke up I started to speak to them, dazed at what had just happened and yet being in Penn Station it was no surprise, more like a curse destined to happen. As I started to say thank you to them the first woman looking down at me, after Michelle had told them that I was ok, "he’s had a seizure, he’s been Epileptic for about 30yrs", said to me that she has family members with seizures too so they understood my problem, no need to explain. They had also called some cops over to help me up, 6 Officers arrived and they wanted to call an ambulance for me, but I told them to hold on and give me a minute.

As I stood up and took off my now dirty leather jacket I handed it over to Michelle and they had a stunned look on their faces, I recall. They looked me over and saw that I was not hurt and I said thank you anyway but I’ll be fine. Although not 100% and still a bit shaken-up an officer asked us where we were headed and walked us over to the seating area about 300ft away and asked the gentleman at the front-desk about our train time and what track we would be on. Michelle and I sat as the officer pointed and we waited for our train to come.

The two times prior this year, the second was after going to a NY Ranger game in Madisen Square Garden as we leaned against a wall away from everybody else that could get hurt from me I still dropped what I was holding and slid down the wall to my right, Michelle was to my left, as I had gotten up there was one cop there asking us if we wanted any help and we both said no. As I probably looked like a drunken fool, which I was not - I was all scuffed up from the dirty floor from my face to shoes, yet nobody this time cared to stop and lend a hand, just stepped away from me.

Not everybody is as generous all the time but there were a few the time before that when Michelle went to get our tickets home as I stayed standing behind her against the giant center pillars near the ticket booths when I slid off of that too. Michelle saw and ran over to me as well as some other people who stayed around me so that I did not get trampled over by a crowd rushing to a train that had been called until I got myself up again. I remember that those ladies that found me there had themselves or family members with the same issues. In Penn Station when a train is called, if you don’t know it is like – All hell breaks loose for a seat and death would have come of it!       

On the train home now that night I found us two seats opposite from each other, didn’t care as long as we had somewhere to sit and put our bags down.

Michelle and I learned something after that last dreadful fall, to never take the LIRR home again because it seems no matter what time of night it is or what great day we had in the city, it will not end well in Penn. So for that matter we will be taking an UBER Car Service home, which is beginning to replace NY Taxi cabs in the city, which I have no problem with. Something tells me that a $40 car/cab service is safer than injuring myself or others because people like the ones that found me lying on the ground will not always be there!

There will be more bad than good in your life - unfortunately. Just try to stay positive about your life and you just might get through the hell you may be living in, if it hasn’t found you yet!