EPILEPSY AWARENESS MONTH
Focusing on care, advocacy, research and education
to prevent epilepsy, seizures, bullying, ignorance,
injury, barriers, burdens, and early death!
One million Americans like myself are still praying for a cure that may never be found. Hope as well as strength is our best chance of surviving from this epidemic. This is a fact for all epileptics to keep up the good fight and to knock out all of the badness trying to hurt us, and hurting us is working to a degree, but, I am still here as many of you are and I plan on it for a long time, God willing. I fall, but I get right back up and back to work. I’ve been injured so many times in so many different ways, but death has not taken me away yet nor do I want it too till we find a cure!
We have good weeks, we have bad ones. I myself am still waiting for that good month to occur as well as back to back weeks, therefore two good weeks over my 26 years have yet to come.
This walk for Epilepsy I would love to do, but, I am here in New York and that walk is in Pasadena, California on Sunday, November 22nd during the Rose Bowl which I could care less about other then these here epileptics of course. A Walk + Run to End Epilepsy, if it only was that simple yet a $500,000.00 fundraising goal can be made. I only wish that there were more individuals like myself, which there are, to share their stories too and possibly more people will care to help because you will never here a thing on the radio or television about it.
As much as this month they say is for Epileptics you will never see an athlete wear a purple ribbon promoting it like they do for breast cancer patients on their sneaker, sock, wrist, chest or collar and there are and have been forever way before cancer started epileptic victims have been dying and it bothers me so. I know that everyone has a mother or family member with cancer and for that I am sorry but, every family has a member as well or few with Epilepsy or Seizures and if not well then you have a very lucky family.
Advocating for Change that Improves Lives!
The Challenge:
No voice for people with epilepsy
Need statewide advocacy
Support passage of bill so students with epilepsy can have access to seizure rescue medications in school, and we continue to support implementation with educational material
Host Epilepsy Awareness Day and educate legislators about epilepsy
Send delegation to D.C. for Epilepsy Public Policy Institute / Advocate for more funding for epilepsy research and programs
Ongoing legislative advocacy to protect rights and live
FINALLY - we need to spread the word to Fight Against Epilepsy and...
FIND A CURE!