Bruno Fiacco

STAYING HEALTHY, THE EPILEPTIC WAY

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I have been battling seizures for many years. I want to share my story and help others live better everyday.

Filtering by Tag: Seizures

PART II - CW OIL: THE RESULTS SO FAR

January 29, 2017  /  Bruno Fiacco

For Michelle and I, the hopes and dreams of my life returning to me to work and to make an example for all of you who listen and take care in what it is that I’m telling you, now entails weeks four through six of where I left you all off in the beginnings of CW Oil and its outcome, in Part I.

That of which I needed time to see how this may work for us while the CW Oil settles in 3 times a day with my medications staying as is. Not one medication was taken out, removed, dropped or lessened - not a one. On the other hand, though, Dr.Kuzniecky upped my dose of Onfi in the morning by half a pill, which is 5 milligrams of a 10-milligram pill, making it now 35, 10, and 30. I did not worry about the increase because I trust my doctors’ orders and nothing had been an issue, so why not?

It turned out so far that the increase is doing much more well than not. I took my doctors’ orders, which was to stick strictly to the plan, to take it slower in life, stay safe around others, nothing to do but wait, and wait I did. Wait for all the medications to work while hoping that no side effects were to occur.

This although is the most important thing that I can tell you on your way to finding a better life for yourselves. 1/8 of a teaspoon may just not be the way it may be for you to take it due to your age, size and strength with all the other meds in you already. I am not telling you this so that you start downing this stuff all in one shot, which is the stupidest way to, say, not live anymore! But if you stick to your 2 or 3 times a day schedule with just a few more drops of the oil onto a spoon of your choice of which to use and travel with, that the oil and the medications your on, may start to see some very promising results.

Along with never forgetting that you must drink many bottles or cups of water every day from morning to night! Alcoholics can forget the whole plan from the start if it is difficult for one to give it up, you have given yourself seizures already most likely. One beer at night during your dinner hours will be okay, unless of course your meds are taken at that same time, and if along with the oil! Something so foolish for me to even think about myself, never mind typing it. And on an average day I will drink over five 17. FL OZ of water. Also, doctors’ orders!

During the December holiday break, I had gone a bit off kilter with my promising conditions and knew why right away, but after the 10day break from work (Michelle’s work). This stands for vacations as well. A person without any conditions can sleep in all day past noon with no problems easily, but, this is not and has not been the same for me ever! Epileptics must stay on their normal everyday schedule, even if it is moving from couch to couch, one house to another, not working as others and being paid week by week. If your regimen is to just wake up outta bed every day, visit to feed a dog or two, read, write, type if possible, that is called work. So there’s no job, big deal! You have a much more difficult one than any other hard working individual, every minute of every single day. To keep ourselves alive for one, and happy for yourself and others. If this task is too difficult for you to understand, well than you’ve got real work to figure out. I watch my wife sleep if she needs it, myself relaxing on a chair next to the bed, because I know that getting back in will be trouble just waiting to happen. (Plus, she’s more adorable that way, makes it hard to look away)!  

You can take that one to heart from an epileptic professional that has tried it all and that miracles do happen when you stick to something and stick to it well!  

PART III- THE MIRACLE MEDICATION? Will be the conclusion of this series coming  out next week. So please keep a look out for my upcoming blog post.

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tags / CW Oil, The Results so far, results, deams, hopes, work, Part I, 3 Times a Day, NYU Langone Medical Center, epilepsy, doctor's orders, stay safe, side effects, teaspoon, water, Seizures, holiday break, take that to heart, miracles

SEIZURES, THANKING GOD, AND A RUBIK'S CUBE...

June 20, 2016  /  Bruno Fiacco

This is one of the most difficult things that any epileptic wants to hear. They will never be able to know what, why, where or when a seizure occurs. The worst thing that any family member, sibling or spouse could do is to get angry at a seizure, and that yelling causes and epileptic to do things so way out of the ordinary that people near you will get hurt as you place yourself in the corner of any room scared at what just happened like a child with arms crossed over their chest and worried about what else may happen.

And it’s never your fault!

Others may blame you for what you just did and continue with the agony put on your head, if you are younger you are probably stronger than the ones who stay with you, day by day - your caretakers. But, others will blame themselves for causing the problem to be worse and those are the ones that you appreciate forever for understanding your situation and they will say “Sorry, I shouldn’t have done this or that to make the seizure possibly worse”. You will feel at blame for your actions and most likely won’t remember what just happened, but others do, so ask them to explain in detail. You will say sorry, always, especially if someone did get hurt trying to keep you safe; and sometimes it can be bad; depending on the level of seizure.

If not we can thank God that the problem you may think you caused didn’t hurt the people around you - The people who watch over you - The people who love you!

You will thank God for things that you should thank God for. That you are alive, the ones you love are not hurt and come home to you every day. I tell my own family and others when they say things like, “Yes, thank God I found my car keys or thank God I found my cell phone”. I say, “Really, is that really what you want to thank God for, not that I’m still here and you're still here, that you woke up from bed this morning, but I can see that that must be very important to you”. And the best part is, nobody ever listens. You put the TV on and the first or last thing you hear in every sentence is Jesus Christ. If you are a religious person as most of you are, you should use his name in prayer or in church, by heart and never use it in vain.  

The Lord, our God was not sent down to us to have His name used in ridiculous ways but as our Savior Who was born and Who died for us. Who watches over us all the days of our lives and Who judges the living and the dead. If this is something that you have forgotten, then I pray for you to remember! I tell people who forgot or never knew themselves that there was one person here on earth who could and did cure the sick and the "demons" which were the epileptics. The deaf, the blind and all else, but the answer I get most sadly is “who?”. “His name was Jesus, have you ever heard of Him before?”.  Every day of my life, when I perform an action like getting up and walking to get a bottle of water or cup of coffee, I hate, but hear almost always, “Jesus Christ, what are you doing?”. And my reaction is always as I stop short, “First of all, I am not Jesus Christ, so stop and secondly, I only wish that I was so that I could stop all of the problems of the world, understand?”.    

This is something you can learn from and to teach others about what is going on in your head all day compared to others. Everybody knows what a Rubik’s Cube is, a 3-D combination puzzle invented in 1974 by a Hungarian sculptor and professor of architecture Erno Rubik, in which you have to get all six sides of different colors of the square together to an even and clean form, which some people say is an impossible game, but it is not so. There are literally 43 252 003 274 189 856 004 ways of solving the Rubik's Cube, so good luck. Now when you have figured that 3D combination out, compare that to the brain cells in a normal functioning brain. Take the Cube, scramble all the sides of the cube around in your hand to start the game over again and you now have the semi-functioning cells of an epileptic brain smacking into each other causing major problems that you need to figure out ways to control.

A Rubik’s Cube is a good puzzle for epileptics to keep their mind busy, put in control and away from things that trigger seizures from occurring. Once you figure that out you may be able to do things that you hadn’t thought before were possible keeping your mind straight. This is not something that you will hear from a neurologist because we need them for all of their studies and research.

And no neurologist will have any problem with you telling them what you do all day, what keeps you interested and busy. A hobby in life is one of the most important things to have. These are things they want you to do, how they want you to be and that you should be enjoying for a normal lifestyle. These stories are the stories that make them see that what they are doing is working for you too. If you can't share your life stories with them, either good or bad, how can a doctor help with anything that you may need them for!

And for an epileptic, that is alot!      

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tags / Seizures, Control, Rubik's Cube, Epileptic, Neurologist, Family Members, Friends, Problems, Siblings, Spouse, Will Get Hurt, Scared, child, Faults, Understanding, Situations, Thanking God, Alive, Loved Ones, Jesus Christ, Religious, In Prayer, By Heart, In Church, Puzzles, Hungarian Sculpter, Erno Rubik, Normal Functioning Brain, Semi-Functioning Brain cells, Epileptic Brian, Major Problems, Trigger Seizures, Studies and Research, Interested and Busy, Hobbies, Stories, Appreciation