Part IV - A VISIT WITH MY NEUROLOGIST

JANUARY 11TH

Going to see Dr. Kuzniecky with my parents and his team of epileptic scientists and nurses at 4p.m., I walked in and out with a face of happiness and laughter, not sorrow and depression!

This was a great surprise to see, by my doctor, that an oil along with all other meds was finally working in my favor. I offered him my bottle of CW OIL which he accepted thankfully, being that he hadn’t had one or seen it in hand; the bottle was close to finished, possibly only a few days left, so to study the oil in the bottle seemed smarter rather than an empty glass bottle, plus I had another waiting for me back home.

Be that at it is, my mother, father, Michelle (on the phone, working as usual) and I, all gave him the same story of a much healthier and much more loving person than ever before. “I love my momma, I can’t go a day without kissing her hello and goodbye”. My mother said the same, sort of “Bruno is like a totally different person now”!

My mother, always the Mother of a Million questions, was speechless. We were just waiting to see what Dr. Kuzniecky had to say, what did Kuzniecky have up his sleeve to share this time, which in the years past given the question “So what’s next?” (medication wise). Not this time. This time I wanted to ask “So how soon until I can start running track & field again Doc, or my laps up and down the Hudson River?” (Too much too soon). Instead he requested and Ambulatory EEG for a day in April. An AEEG for those who are not familiar, is an EEG just like any other, but to be worn for a day to show your results in your daily lifestyle, while strapping a bag to your waist for the device to work. Then the information is delivered back to your neurologist for further review the very next day.  

Pictured above is my greatest Neurologist, Dr. Ruben Kuzniecky from the NYU Epilepsy Center in NYC.

The one and only thing that was not changed in my life was my napping epidemic. On an average day, my napping pattern is an afternoon 2p.m. hour and a half rest, two at most, anything longer affects me, plus I’m not planning on sleeping my day away, no matter how crazy the situation may be. Dr. Kuzniecky always has the best and obvious advice, a quick one two punch! To take an extra amount of oil, just one more afternoon drop of your normal amount and let’s see how that does, because apparently, its working for everything else. And it does indeed! From that day on my naps were not so dreaded, but rather accepted in my life’s personal issues. No more waking up dazed and concerned in my Epileptic Netherworld of what was to come.

As it went on I could see how they were all dumbfounded, but I was not! Nor was Michelle. Her and I could see all the major differences that were finally happening, but some could not. Or just couldn’t conclude on what they always wanted to happen was finally happening. And many people can’t, even those you know. And for myself, it seemed like something that was pulled out of a Tim Burton movie. I could see my life being pulled into different directions, the right directions, and everything was moving in slow motion. All on my behalf from a now 36 soon to be 37yr old who’s life has been upside down and spinning all around since I was ten, and from birth!

On a side note - a little back story about myself - as we all hope to God know already, being yanked out of your mother’s womb with a pair of metal forceps on an infant’s delicate not to be touched head is trouble waiting to happen!!

PART III - THE MIRACLE: Ryhme & Reason

Many people call CW OIL the Miracle Oil, but how would you know about that unless you or someone else you may know has tried it. For those who want to listen and hopefully learn to better their lives for brighter and much heathier, longer future keep reading.

Once you have figured out all the necessary medications with your neurologist, who helps to break down the walls of unnecessary predicaments due to your everyday problems caused by seizures, epilepsy or not, it is best to realize that today and tomorrow are the days that we look forward to having.

For better and not worse!

Have you ever woken up on a Monday morning, flipping yourself over to the side of your bed, smiled, saying out loud “Yes it’s Monday”? Probably not, because who would, unless there is something great that is happening now that wasn’t ever there before, and the same goes for the rest of the week. There is something to live for now and to share with others the possibilities of that New Life. And the possibilities of that New Life are endless!

There are stories that I could fill you in that never ends, but boring my readers with the same dreaded life just isn’t my way anymore; not my style. This New Life now of can’t waiting to be woken up by my wife or alarm and giggling that this is going to be a big day, no matter the day, is a Miracle itself!

To do something good for others in need and to those who have done something good for you is Rewarded by God!

And by that everything in my life has changed almost 360 degrees, and all for the better, not one thing for the worse. It’s truly an unbelievable feeling of how a little bottle of oil can change our lives, hopefully forever. You begin to see all the Joy that the world has to offer and that has been handed down to you by others. You have no fear of the world that which you may have had before. You begin to see things much more clearly now while keeping yourself safe, occupied, in control of things that we only wish we could of have before. That sensation sticks with a person for the rest of their lives.

The oil can’t save you from everything, there will be times when problems occur, but that’s life for an epileptic. A seizure will come, but finding a New Life to live won’t unless you put your FULL HEART AND SOUL into it!

If there ever was a Miracle medication that had to be found as simple as a Marijuana leaf being grown from the ground, along with an unbelievable amount of prayers being said throughout the beginning of time, and two brothers from Colorado with all the respect for a young girl named Charlotte who have found a way for a better, normal, more action-packed life of opportunities, it is finally here!      

As a bonus, Part IV will be additional information on a day with my neurologist.

PART II - CW OIL: THE RESULTS SO FAR

For Michelle and I, the hopes and dreams of my life returning to me to work and to make an example for all of you who listen and take care in what it is that I’m telling you, now entails weeks four through six of where I left you all off in the beginnings of CW Oil and its outcome, in Part I.

That of which I needed time to see how this may work for us while the CW Oil settles in 3 times a day with my medications staying as is. Not one medication was taken out, removed, dropped or lessened - not a one. On the other hand, though, Dr.Kuzniecky upped my dose of Onfi in the morning by half a pill, which is 5 milligrams of a 10-milligram pill, making it now 35, 10, and 30. I did not worry about the increase because I trust my doctors’ orders and nothing had been an issue, so why not?

It turned out so far that the increase is doing much more well than not. I took my doctors’ orders, which was to stick strictly to the plan, to take it slower in life, stay safe around others, nothing to do but wait, and wait I did. Wait for all the medications to work while hoping that no side effects were to occur.

This although is the most important thing that I can tell you on your way to finding a better life for yourselves. 1/8 of a teaspoon may just not be the way it may be for you to take it due to your age, size and strength with all the other meds in you already. I am not telling you this so that you start downing this stuff all in one shot, which is the stupidest way to, say, not live anymore! But if you stick to your 2 or 3 times a day schedule with just a few more drops of the oil onto a spoon of your choice of which to use and travel with, that the oil and the medications your on, may start to see some very promising results.

Along with never forgetting that you must drink many bottles or cups of water every day from morning to night! Alcoholics can forget the whole plan from the start if it is difficult for one to give it up, you have given yourself seizures already most likely. One beer at night during your dinner hours will be okay, unless of course your meds are taken at that same time, and if along with the oil! Something so foolish for me to even think about myself, never mind typing it. And on an average day I will drink over five 17. FL OZ of water. Also, doctors’ orders!

During the December holiday break, I had gone a bit off kilter with my promising conditions and knew why right away, but after the 10day break from work (Michelle’s work). This stands for vacations as well. A person without any conditions can sleep in all day past noon with no problems easily, but, this is not and has not been the same for me ever! Epileptics must stay on their normal everyday schedule, even if it is moving from couch to couch, one house to another, not working as others and being paid week by week. If your regimen is to just wake up outta bed every day, visit to feed a dog or two, read, write, type if possible, that is called work. So there’s no job, big deal! You have a much more difficult one than any other hard working individual, every minute of every single day. To keep ourselves alive for one, and happy for yourself and others. If this task is too difficult for you to understand, well than you’ve got real work to figure out. I watch my wife sleep if she needs it, myself relaxing on a chair next to the bed, because I know that getting back in will be trouble just waiting to happen. (Plus, she’s more adorable that way, makes it hard to look away)!  

You can take that one to heart from an epileptic professional that has tried it all and that miracles do happen when you stick to something and stick to it well!  

PART III- THE MIRACLE MEDICATION? Will be the conclusion of this series coming  out next week. So please keep a look out for my upcoming blog post.