Part IV - A VISIT WITH MY NEUROLOGIST
JANUARY 11TH
Going to see Dr. Kuzniecky with my parents and his team of epileptic scientists and nurses at 4p.m., I walked in and out with a face of happiness and laughter, not sorrow and depression!
This was a great surprise to see, by my doctor, that an oil along with all other meds was finally working in my favor. I offered him my bottle of CW OIL which he accepted thankfully, being that he hadn’t had one or seen it in hand; the bottle was close to finished, possibly only a few days left, so to study the oil in the bottle seemed smarter rather than an empty glass bottle, plus I had another waiting for me back home.
Be that at it is, my mother, father, Michelle (on the phone, working as usual) and I, all gave him the same story of a much healthier and much more loving person than ever before. “I love my momma, I can’t go a day without kissing her hello and goodbye”. My mother said the same, sort of “Bruno is like a totally different person now”!
My mother, always the Mother of a Million questions, was speechless. We were just waiting to see what Dr. Kuzniecky had to say, what did Kuzniecky have up his sleeve to share this time, which in the years past given the question “So what’s next?” (medication wise). Not this time. This time I wanted to ask “So how soon until I can start running track & field again Doc, or my laps up and down the Hudson River?” (Too much too soon). Instead he requested and Ambulatory EEG for a day in April. An AEEG for those who are not familiar, is an EEG just like any other, but to be worn for a day to show your results in your daily lifestyle, while strapping a bag to your waist for the device to work. Then the information is delivered back to your neurologist for further review the very next day.
Pictured above is my greatest Neurologist, Dr. Ruben Kuzniecky from the NYU Epilepsy Center in NYC.
The one and only thing that was not changed in my life was my napping epidemic. On an average day, my napping pattern is an afternoon 2p.m. hour and a half rest, two at most, anything longer affects me, plus I’m not planning on sleeping my day away, no matter how crazy the situation may be. Dr. Kuzniecky always has the best and obvious advice, a quick one two punch! To take an extra amount of oil, just one more afternoon drop of your normal amount and let’s see how that does, because apparently, its working for everything else. And it does indeed! From that day on my naps were not so dreaded, but rather accepted in my life’s personal issues. No more waking up dazed and concerned in my Epileptic Netherworld of what was to come.
As it went on I could see how they were all dumbfounded, but I was not! Nor was Michelle. Her and I could see all the major differences that were finally happening, but some could not. Or just couldn’t conclude on what they always wanted to happen was finally happening. And many people can’t, even those you know. And for myself, it seemed like something that was pulled out of a Tim Burton movie. I could see my life being pulled into different directions, the right directions, and everything was moving in slow motion. All on my behalf from a now 36 soon to be 37yr old who’s life has been upside down and spinning all around since I was ten, and from birth!
On a side note - a little back story about myself - as we all hope to God know already, being yanked out of your mother’s womb with a pair of metal forceps on an infant’s delicate not to be touched head is trouble waiting to happen!!