PART I - CHARLOTTE’S WEB EVERYDAY ADVANCED HEMP OIL

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Back in August 2015, when Josh Stanley, one of the two Stanley Brothers of Colorado, along with Joel, the inventors of the CW OIL, said to us, Michelle and I, that he needed an adult with epileptic issues and yet can talk to to change their futures and to see the finished product and its results. Basically, he just needed a face that he could work with, simply by finding out about me through this website. Lucky for us, he was staying in New York at the time. Josh told us that he needed time, that him and his brother were making a solution for adults, and that when it was completed, that he would be getting back to us and to be keeping in touch. And soon!

Jumping ahead now to Thursday, September 29th, 2016, with a visit to see my neurologist, Dr. Kuzniecky, who always keeps us informed of future medications and experiments happening or that are in production and ready to be ordered or taken at the right time. The special Hemp oil has been brought to our attention for years now and that one day it will be available to be used in New York without any problems of getting it ordered. The only other scenario was to travel up to Colorado yourself every month, once or twice, and to buy it straight from the factory, as we were told. The product was not finished yet, so to take it as an adult could have caused problematic side affects, so ruining any chances of trying to find a way for the product to work when I knew that the day was coming as Michelle and I were told first hand by Josh Stanley himself. 

My doctor said to us himself that it may cost from up to $500 to $600 a month, not FDA approved yet, so the money would have to be paid up front on the order. Five to six hundred dollars I said no problem, if something was finally working for us epileptics, I would have considered a thousand easily. Don't ask me how, I am no richer then any other person, but to get my life back in order, and my freedom back, I had no reason to believe that if it has been working well for children lucky enough to stopping this demon from attacking us, as of old theories, Biblical stories, that something now these days has to make it end, before it ends us.

On Columbus Day, Monday of October 10th,  our same day Holiday here in America, Michelle and I logged into THE REALM OF CARING, where we were told to go by my neurologist, which is the number 1 place to be for all struggling epileptics to be if needed.

Now to find the right medication for myself, which was now ready to purchase and order for a lot less then my doctor had thought. For $275.00, free of shipping and handling and tax free, that which is on purchases over $30 within the United States. The order was purchased and went out on that Friday, October 14th from CW BOTANICALS COLORADO and in my hands that very day. There are two choices to chose from, Mint Chocolate or Olive Oil Extract flavors along with two different sizes as well, a 30ml to a 100ml in all different types, from children to adults, canine pets included. I chose the 100ml of olive oil being that its pretty obvious when you are up in age and that this amount would be the right one, but it is so unknown, so any person can not deal with precautions of bottles with less of a dosage. If chosen and taking correctly will save you money instead of over-ordering month by month.

There are obvious conditions in taking this oil, which is first an agreement by your doctor due to the medication your on already. Second is the style of which taking this oil if it is approved and appropriately following your doctors orders, which is a one time taken for the first week so that your body can recognize it, just like any other medication, coming on or off. And thirdly, the amount to be taken which drips out, a 1/8th of a teaspoon, which as well needs to be figured out by yourself, with help if needed. The way that Michelle and I figured it out to be, by our own intellect, is 3 to 4 drips of the bottle, after being well shaken, and by mouth, along with a bottle of water at hand.  

The second week, we use the same amount ordered, by your doctor and the bottles rules, twice a day, morning and night, and if all is going well for you or with any side effects caused, must be reported and informed to you doctor immediately, from day one!

Before we started week three, I had some unlikely things happen that did worry Michelle and I, do to the sudden increase in some drastic seizures that had started all over again, but I didn't falter at the task I was given, to find an everlasting cure. So I fought through my problems, as always, tried hard to keep a less worries outlook and to let the medications settle in with the CW Oil as some of my seizures started to vanish, that is besides the most important thing, the falling.

I tell you this to keep all of your hopes and dreams alive as well! The one thing that we know, my doctor mostly, is that I will never give up or give in, that I am his number One Fighter, as he knows best and the team we have working for us at NYU Langone Epilepsy Center, that I am the last person that he would ever consider a quitter! And that stands for all of you as well!
So be that as it is, I let the medications take place, blood shots every week or two, and let the CW Oil settle in with my Morning- prozac, Onfi, Dilantin. Afternoon- Onfi, Dilantin and vitamins, a multi vitamin, Turmeric (a memory brain healing vitamin) and Vitamin D-3 5000IU. At Night- Aptiom, Dilantin, Onfi, Fycompa, and now, CW Oil. The CW Oil can be taken morning, afternoon and night at separate times so that I can see for myself and yours a possible change in life due to it. All of these meds I scare myself from the amount at which each is taken, ones body, ones self, one problem, and yet still cannot be considered a cure! But when all of the meds taken are working all well together you may, in time, find the results to be, astonishing!

PART II - THE RESUTS SO FAR will continue next week. So please keep a look out for my upcoming blog post.

WHAT IT MEANS TO BE HOUSE-STRICKEN & STRONG

Make the best of what you have in your life because nobody knows what tomorrow will bring and it is usually worse than better. Being house-stricken and on a couch or being watched by everyone 24/7 is no way to live your life. As it is being wasted away hiding behind the bars you’ve made which others don’t see - causes rage. Somedays more uncontrollable then the ones before with hopes and dreams that someday this hell will end and yet it just continues and continues on and on and we are supposed to just smile and say that everything is okay, when you know that this life is terrible and the only thing is Nothing!

Because this is what they expect of you, to sit back and do not move. Makes them happy although you can or maybe not, but it is just all the same as long as they are happy and you are suffering, it doesn’t matter. Some of them care too much and you become a burden to them and of course they won’t ever admit it, but you catch them talking and saying how it is good to be free when so and so is not here. They may be a loving caretaker, but they wish to be free as well and I don’t see why they think that they are trapped like us at home when the truth is that it all drives us crazy in a stressful environment.

You can take that with a grain of salt because it is the most truthful thing that I have ever shared with anyone and now with Everyone! 

I rise I fall, if I walk I am fine although if I stand for a minute, I fall. This recently happened to me on Monday, MY fault - leaning against a wall speaking to Michael, my brother with my grandmother standing behind him so I fell straight down smashing the floor again, this time I did think that my elbows, the right one mostly, was broken. I notice Michael standing there and my grandmother laughing behind him. I know that my other brothers, Chris and Anthony and my wife would have tried to catch me even if they weren’t able. I was down in pain, screaming in agony - hopefully you may never experience this. I rose up and in complete aggravation at her smiling at me and so I scared her away for the rest of the day by kicking the wall I was leaning against as Michael told her to leave. There is nothing worse than having someone laugh at you who doesn’t understand!

Lucky for me though my elbow’s where not shattered or broken as they felt, but bending them was still difficult. I sat in the chair that was behind me and waited for my mother to return from her 5 min trip she needed to take. I told her what happened of course after she saw me with swollen elbow’s, I needed to put ice on. My elbow’s where patched up that night with KT Tape Pro Elastic which has Kinesiology Therapeutic Synthetic on it for athletes and anyone in pain and works great for any body part.       

There is something though that should never be forgotten which I have told myself since I was a young teenager and has kept me strong ever since which I just happened to find a picture of the other day for the first time.  I believe this to be true for the strong willed like you and I. It goes like this:

YOU WERE GIVEN THIS LIFE BECAUSE YOU ARE STRONG ENOUGH TO LIVE IT!

 And don’t ever think anything less of yourself!

I have always told myself that I would not want this problem of mine to be cursed on my worst enemy and definitely no one in my family because I know that none of them would be able to withstand all the drama I’ve been put through. You hear all the time that there is no cure for this and for that like we did not know and it that supposed to make us happy? No. I am pretty sure that the 65 Million people living with Epilepsy on Earth have figured that out already for themselves.

You all know from my pictures, not all great looking, but I am still here after all the drama and still look the same as on my home page of my crazy life. Same guy still here for you. You have questions, I have most of the answers, lived through them over the past 4 years, but being as I said - House-Stricken - it has blinded me from the outside world; friends have to fill me in as well. I get what I need mostly from my family at parties because I’m not allowed to leave wherever I may be which is not many places!

NEWS FLASH

Money is nothing to me or to anybody really, you and I can be rich beyond belief and yet if would not change a thing about how our lives are or how we are treated by others. We will still be here getting stared down, no difference what so ever. Christopher Reeves, rich and could not help himself from falling off of a horse, breaking his spine and getting paralyzed. He is now gone. Michael J. Fox, rich and for the past 20 years has been battling Parkinson’s disease and is still acting, but behind the screen or interviews is extremely sad to watch. Money can not fix things, it just makes our doctors and their suppliers of medications and our hospitals richer because they don’t want us healthy living normal. They need us otherwise who is going to pay their salary and make them happy? Epilepsy has been around forever there’s no way that they haven’t found a cure for one of the 2 top major killers in the world, not a disease but something uncontrollable to the "lucky ones" that have it. I have an uncontrolled problem and I am stuck on a seat every minute of every hour and am told when called always to calm down and stay safe, relax!

I would love for someone to say just once to do something that I’m not already stuck at home doing. Just once would someone say “Hey Bruno, get off of that God-forsaken couch, open the door and go for a run, see if they can catch you” I know that they can’t, but who knows. It hasn’t been done in years, literally.

Is it so wrong to think that HOPEFUL thought for those who are House-Stricken and Strong, but even so a world without a cure is not the world we chose to live in.