PART I - CHARLOTTE’S WEB EVERYDAY ADVANCED HEMP OIL

Learn more about ordering this product Here.

Back in August 2015, when Josh Stanley, one of the two Stanley Brothers of Colorado, along with Joel, the inventors of the CW OIL, said to us, Michelle and I, that he needed an adult with epileptic issues and yet can talk to to change their futures and to see the finished product and its results. Basically, he just needed a face that he could work with, simply by finding out about me through this website. Lucky for us, he was staying in New York at the time. Josh told us that he needed time, that him and his brother were making a solution for adults, and that when it was completed, that he would be getting back to us and to be keeping in touch. And soon!

Jumping ahead now to Thursday, September 29th, 2016, with a visit to see my neurologist, Dr. Kuzniecky, who always keeps us informed of future medications and experiments happening or that are in production and ready to be ordered or taken at the right time. The special Hemp oil has been brought to our attention for years now and that one day it will be available to be used in New York without any problems of getting it ordered. The only other scenario was to travel up to Colorado yourself every month, once or twice, and to buy it straight from the factory, as we were told. The product was not finished yet, so to take it as an adult could have caused problematic side affects, so ruining any chances of trying to find a way for the product to work when I knew that the day was coming as Michelle and I were told first hand by Josh Stanley himself. 

My doctor said to us himself that it may cost from up to $500 to $600 a month, not FDA approved yet, so the money would have to be paid up front on the order. Five to six hundred dollars I said no problem, if something was finally working for us epileptics, I would have considered a thousand easily. Don't ask me how, I am no richer then any other person, but to get my life back in order, and my freedom back, I had no reason to believe that if it has been working well for children lucky enough to stopping this demon from attacking us, as of old theories, Biblical stories, that something now these days has to make it end, before it ends us.

On Columbus Day, Monday of October 10th,  our same day Holiday here in America, Michelle and I logged into THE REALM OF CARING, where we were told to go by my neurologist, which is the number 1 place to be for all struggling epileptics to be if needed.

Now to find the right medication for myself, which was now ready to purchase and order for a lot less then my doctor had thought. For $275.00, free of shipping and handling and tax free, that which is on purchases over $30 within the United States. The order was purchased and went out on that Friday, October 14th from CW BOTANICALS COLORADO and in my hands that very day. There are two choices to chose from, Mint Chocolate or Olive Oil Extract flavors along with two different sizes as well, a 30ml to a 100ml in all different types, from children to adults, canine pets included. I chose the 100ml of olive oil being that its pretty obvious when you are up in age and that this amount would be the right one, but it is so unknown, so any person can not deal with precautions of bottles with less of a dosage. If chosen and taking correctly will save you money instead of over-ordering month by month.

There are obvious conditions in taking this oil, which is first an agreement by your doctor due to the medication your on already. Second is the style of which taking this oil if it is approved and appropriately following your doctors orders, which is a one time taken for the first week so that your body can recognize it, just like any other medication, coming on or off. And thirdly, the amount to be taken which drips out, a 1/8th of a teaspoon, which as well needs to be figured out by yourself, with help if needed. The way that Michelle and I figured it out to be, by our own intellect, is 3 to 4 drips of the bottle, after being well shaken, and by mouth, along with a bottle of water at hand.  

The second week, we use the same amount ordered, by your doctor and the bottles rules, twice a day, morning and night, and if all is going well for you or with any side effects caused, must be reported and informed to you doctor immediately, from day one!

Before we started week three, I had some unlikely things happen that did worry Michelle and I, do to the sudden increase in some drastic seizures that had started all over again, but I didn't falter at the task I was given, to find an everlasting cure. So I fought through my problems, as always, tried hard to keep a less worries outlook and to let the medications settle in with the CW Oil as some of my seizures started to vanish, that is besides the most important thing, the falling.

I tell you this to keep all of your hopes and dreams alive as well! The one thing that we know, my doctor mostly, is that I will never give up or give in, that I am his number One Fighter, as he knows best and the team we have working for us at NYU Langone Epilepsy Center, that I am the last person that he would ever consider a quitter! And that stands for all of you as well!
So be that as it is, I let the medications take place, blood shots every week or two, and let the CW Oil settle in with my Morning- prozac, Onfi, Dilantin. Afternoon- Onfi, Dilantin and vitamins, a multi vitamin, Turmeric (a memory brain healing vitamin) and Vitamin D-3 5000IU. At Night- Aptiom, Dilantin, Onfi, Fycompa, and now, CW Oil. The CW Oil can be taken morning, afternoon and night at separate times so that I can see for myself and yours a possible change in life due to it. All of these meds I scare myself from the amount at which each is taken, ones body, ones self, one problem, and yet still cannot be considered a cure! But when all of the meds taken are working all well together you may, in time, find the results to be, astonishing!

PART II - THE RESUTS SO FAR will continue next week. So please keep a look out for my upcoming blog post.

ALWAYS FOLLOW YOUR FIRST INSTINCT!

If there is a question in your head and you are wondering what it is that you should be doing, whether medication or something that has been building up inside of you and you feel the right thing to do, then for your own safety, and others, DO IT! 100% of the time we think back to why didn't I just do it, because the life you live - your life, is not known to anyone but yourself - Not your doctor, not your guardians or family members who try to point you in the right direction when you wake up the next day beating yourself up on what the right thing to do is. And it is more than often always what you chose not to do in the first place. 

My own life for instance is a perfect example of how to do what is right when you know that the circumstances may be horrible until you share your thoughts out loud with a listener and the  knowledge you had and didn't run with may affect the way you live. Falling down to the floor again and again after waking up out of bed feeling perfectly fine like any other person more normal then you is just not the way for any epileptic like myself live by. We must take advantage of the life that we have by not choosing to do the wrong things when we understand what we should have done, and yet didn't!

Some of us will get up, stand on our own two feet while checking for cuts and bruises, bumps and dents to our faces, foreheads, front and backs  in pain from accidents that we did not cause, but need to live with. We can thank God that when we do get up off of the floor, that we are still for One: In one piece and telling yourself and/or others that you will be okay and healed, but Secondly: That no one else was injured or hurt around you. The second is a much greater deal to myself and others that your loved ones stay behind you so that not one person, including yourself, will have problems to deal with later in life, praying to God that there will be a later in life, for yourself and the ones you care the most about. 

Back to today's point at hand though, is that I have started a new medication and was dictated to take the one extra dose the very next day. The night before when I had a little Halloween party with my three brothers and sister in law, everything went really well. But, more seriously was the thought that I had as the movies played in taking a new medication just one day ahead of schedule, which would have been no big deal to my neurologist if I had, and yet, I didn't. The next morning came along and I was tossed and turned, from left to right, back and forward again, when Michelle saw me fall forward, away from her, thinking that I had broken my nose, but once again I turned myself over, nothing broken as she had thought, but just battered a bit. Once I was seated in my bathroom chair I was so much more concerned about her than I. As she patched me up with band-aids on my right arm only with strains to my back and neck as usual - something that almost never goes away, I kept asking her the same question, that if she had gotten hurt at all. Thankfully she was not, as in past situations due to my more serious seizure effects. 

I later in the day told her, once I was feeling totally well again, that I wanted to start the new medication a day ahead of time, and she said "that if that the was the way that you felt, that you should always choose your first instinct, and possibly things like this would not have happened!" I couldn't  agree with her more about anything else going on in my life, especially the obvious. But, aside from the five medications that I have been taking, and still on as of today, the other was supposed to have interactions with just one, which no medical drug has ever given me problems before besides Topomax, that I was given at NYU back about 15 years which was stopped completely due to my weight loss of about 20 pounds in a week. 

 I have still been trying hard to level out each of the medications with my neurologist and his team at NYU Langone Medical Center. Everything has been difficult and rough, to say the least, and for my wife as well who has tried and tried her best for me and my condition. She has kept in touch with Josh Stanley through emails and phone calls ever since we met up with him here in New York last year as you may have read in my past entry which ties and pulls us into my next story of what has now almost fully become legal in NY, but not all states yet, from Colorado. Something quite special which seems so far to be showing positive signs - called Charlotte's Web! 

Stay Tuned for my next blog in November which is also National Epilepsy Month!

HOPE AT THE END OF THE TUNNEL

     Onfi, Fycompa, Aptiom, Dilantin and Prozac

    For those of you out there looking for a happy ending to all of their sad stories as I was, there is Hope! Epilepsy is not a sad ending to a terrible life if that’s what you have or had in mind. Lord knows I did. For 26 years I have been messed up on meds, many different neurologists and every medication that there is still on the market. I was even a guinea pig many times for two medications including, which I am still on - Onfi and Fycompa at NYU Epilepsy Center for a week or two each over these past two years.

    I had thought for sure that this damn problem of mine was a lost cause and that I was to end up the rest of my life on mine and my parents couch, seat, chair, whatever I could sit on safely on and not injuring anybody because of my falling issues, as well as without a job either for the rest of my life. Not that it is any different yet today, still living day by day.  

   Here in New York and elsewhere you need to be totally seizure free for a year to drive, not that I blame them, nor do I wish to ever again anyway with all of the crazy drivers on the road, but, a full-time job I would appreciate deeply. Being seizure free to work again has to be approved by your doctor. New York, being Epileptic, is one of the harshest states in America and the world even. Not that I can blame them either for it because states like Texas allow you to drive again just after three months. Sooner if your doctor approves it. So all you cowboys get to jump back into your Ford F150 Super Duty’s much quicker if your brain allows it to. Most states allow the same, some do not even have monthly standards, Just a doctors approval.

    But, finally though, after all of these years there is ‘A light at the End of the Tunnel’ like they say. All hope is not lost as I thought for so long. Every year on New Year’s Eve I’ve wished for the same New Year’s Resolution. Not for a bicycle, car or toy but, ‘that one day this would all stop and go away’. Not totally but, that someone, someday would find the right dose, combination to settle my brain waves from acting up like crazy. Much more than a person without any problems.

This year though, I seemed to have finally got my wish!

    Am I an Epileptic for life, most certainty. Will I have seizures like I did in the past when I was growing up and able to work with, yes. There is no cure for one of the oldest problems that man-kind has ever had. But, finding the right dose of medications, something that I thought I would never find, can be. Many say that I am jumping too far ahead or that it is just a honeymoon affect or period. The honeymoons over! How far ahead do I have to look forward to since December 15th when all hell broke loose, almost killing me. Two months later although, I am still feeling fine, more than 95% better than before that crazy day!

    Not difficult to say but I never want to see myself in another ambulance, ever again or in another hospital bed as well! Call me crazy but, whofor that matter would like too.

No one.

    I used to call every bathroom, restroom or shower anywhere at any place a Death Trap! My parent’s house mostly was a different fall like no other place on Earth. As soon as I stepped in I fell. If I sat I fell, and if not, washing my hands surely dropped me down to the ground. And thank God as well that this has all almost stopped too. Unbelievable but true although, I keep myself safe as in wearing a helmet still if I am in my house or home.

   As well as I feel, this will not stop me from my semi-daily work of keeping up with my blogs, keeping up with my stories which are all sadly true as well as keeping my followers interested. Once again I am not healed or cured, nor will I ever be but, with the right medications, there just might be hope for you too!

    So There is Hope at the End of the Tunnel. May take some time, lots and lots of time unfortunately, but, possibly by tests, or not, you may find the right doctors with the right medications or answers to your problems is possible!