Bruno Fiacco

STAYING HEALTHY, THE EPILEPTIC WAY

I have been battling seizures for many years. I want to share my story and help others live better everyday.

STARING OUT OF A WINDOW

Some of us find ourselves sometimes staring out of a window every day and night,
Listening to the wind blow,

Wondering where is my life taking me?


When will my life finally take a turn for the better?

We stare at the leaves on the trees,
The blooming flowers,
We listen to the birds chirping in the air
And we wonder why.

Why can’t my life be as easy and beautiful as those birds who have their freedom?

Or those healthy leaves waving up in the air?


And then reality checks in,
Leaving us every day feeling like a caged animal or
A prison cellmate
staring out of a window.   

While in deep thought of why you are not any of the above,
but tend to feel even worse when a person in prison who can befriend others,
Have their break time,
Gym time,
Gaming time,
but you’re just that guy.

That guy who wishes he could see a friend or a coworker,
When all he sees is that aging couch over there,
Along with his or her own life being wasted away minute by minute.

With people trying to do the right thing for you by trying to keep you safe from the outside world of opportunities,

While leaving you staring out of a window.

The seasons change,
The snow falls from the beautiful white clouds,
The snow melts away and the rain begins to splash down on the ground
While soiling the muddy banks for wild life’s creatures we love to return from.

The habitats of nature’s ways of life begin again full circle right before our own eyes.

And all we get to do is sit,

And stay seated while our eyes start to water up,
As we bow our heads to the wooden floor so not to be seen.
As we continue in our wonderment of the outside world from staring out of a window.      

Watching cars drive by,
Watching for kids on the street when there aren’t any,
And watching those older folks who were taking their daily walks.
Staring at them wondering what a wonderful life.

But then those folks who you never met stopped coming.

Cars full of kids lessened as you notice lives dying away all around you.
While you sat wasting your own away while staring out of a window.

Year by year you stay,
Looking at the ground while the leaves on the trees begin to fall.
T
he green grass that you haven’t ever stepped on dies,
The precious flowers wilt,
The birds fly south and you find your self all alone.
Dying away and coming back to life again like the leaves on the trees,
The grass begins to prosper.

Your friends return from down south while all along you still find yourself in denial of what your life could have achieved.

While we find ourselves in that same exact spot on that aging couch staring out of a window.  

Part IV - A VISIT WITH MY NEUROLOGIST

JANUARY 11TH

Going to see Dr. Kuzniecky with my parents and his team of epileptic scientists and nurses at 4p.m., I walked in and out with a face of happiness and laughter, not sorrow and depression!

This was a great surprise to see, by my doctor, that an oil along with all other meds was finally working in my favor. I offered him my bottle of CW OIL which he accepted thankfully, being that he hadn’t had one or seen it in hand; the bottle was close to finished, possibly only a few days left, so to study the oil in the bottle seemed smarter rather than an empty glass bottle, plus I had another waiting for me back home.

Be that at it is, my mother, father, Michelle (on the phone, working as usual) and I, all gave him the same story of a much healthier and much more loving person than ever before. “I love my momma, I can’t go a day without kissing her hello and goodbye”. My mother said the same, sort of “Bruno is like a totally different person now”!

My mother, always the Mother of a Million questions, was speechless. We were just waiting to see what Dr. Kuzniecky had to say, what did Kuzniecky have up his sleeve to share this time, which in the years past given the question “So what’s next?” (medication wise). Not this time. This time I wanted to ask “So how soon until I can start running track & field again Doc, or my laps up and down the Hudson River?” (Too much too soon). Instead he requested and Ambulatory EEG for a day in April. An AEEG for those who are not familiar, is an EEG just like any other, but to be worn for a day to show your results in your daily lifestyle, while strapping a bag to your waist for the device to work. Then the information is delivered back to your neurologist for further review the very next day.  

Pictured above is my greatest Neurologist, Dr. Ruben Kuzniecky from the NYU Epilepsy Center in NYC.

Pictured above is my greatest Neurologist, Dr. Ruben Kuzniecky from the NYU Epilepsy Center in NYC.

The one and only thing that was not changed in my life was my napping epidemic. On an average day, my napping pattern is an afternoon 2p.m. hour and a half rest, two at most, anything longer affects me, plus I’m not planning on sleeping my day away, no matter how crazy the situation may be. Dr. Kuzniecky always has the best and obvious advice, a quick one two punch! To take an extra amount of oil, just one more afternoon drop of your normal amount and let’s see how that does, because apparently, its working for everything else. And it does indeed! From that day on my naps were not so dreaded, but rather accepted in my life’s personal issues. No more waking up dazed and concerned in my Epileptic Netherworld of what was to come.

As it went on I could see how they were all dumbfounded, but I was not! Nor was Michelle. Her and I could see all the major differences that were finally happening, but some could not. Or just couldn’t conclude on what they always wanted to happen was finally happening. And many people can’t, even those you know. And for myself, it seemed like something that was pulled out of a Tim Burton movie. I could see my life being pulled into different directions, the right directions, and everything was moving in slow motion. All on my behalf from a now 36 soon to be 37yr old who’s life has been upside down and spinning all around since I was ten, and from birth!

On a side note - a little back story about myself - as we all hope to God know already, being yanked out of your mother’s womb with a pair of metal forceps on an infant’s delicate not to be touched head is trouble waiting to happen!!