Bruno Fiacco

STAYING HEALTHY, THE EPILEPTIC WAY

I have been battling seizures for many years. I want to share my story and help others live better everyday.

SEIZURES, THANKING GOD, AND A RUBIK'S CUBE...

This is one of the most difficult things that any epileptic wants to hear. They will never be able to know what, why, where or when a seizure occurs. The worst thing that any family member, sibling or spouse could do is to get angry at a seizure, and that yelling causes and epileptic to do things so way out of the ordinary that people near you will get hurt as you place yourself in the corner of any room scared at what just happened like a child with arms crossed over their chest and worried about what else may happen.

And it’s never your fault!

Others may blame you for what you just did and continue with the agony put on your head, if you are younger you are probably stronger than the ones who stay with you, day by day - your caretakers. But, others will blame themselves for causing the problem to be worse and those are the ones that you appreciate forever for understanding your situation and they will say “Sorry, I shouldn’t have done this or that to make the seizure possibly worse”. You will feel at blame for your actions and most likely won’t remember what just happened, but others do, so ask them to explain in detail. You will say sorry, always, especially if someone did get hurt trying to keep you safe; and sometimes it can be bad; depending on the level of seizure.

If not we can thank God that the problem you may think you caused didn’t hurt the people around you - The people who watch over you - The people who love you!

You will thank God for things that you should thank God for. That you are alive, the ones you love are not hurt and come home to you every day. I tell my own family and others when they say things like, “Yes, thank God I found my car keys or thank God I found my cell phone”. I say, “Really, is that really what you want to thank God for, not that I’m still here and you're still here, that you woke up from bed this morning, but I can see that that must be very important to you”. And the best part is, nobody ever listens. You put the TV on and the first or last thing you hear in every sentence is Jesus Christ. If you are a religious person as most of you are, you should use his name in prayer or in church, by heart and never use it in vain.  

The Lord, our God was not sent down to us to have His name used in ridiculous ways but as our Savior Who was born and Who died for us. Who watches over us all the days of our lives and Who judges the living and the dead. If this is something that you have forgotten, then I pray for you to remember! I tell people who forgot or never knew themselves that there was one person here on earth who could and did cure the sick and the "demons" which were the epileptics. The deaf, the blind and all else, but the answer I get most sadly is “who?”. “His name was Jesus, have you ever heard of Him before?”.  Every day of my life, when I perform an action like getting up and walking to get a bottle of water or cup of coffee, I hate, but hear almost always, “Jesus Christ, what are you doing?”. And my reaction is always as I stop short, “First of all, I am not Jesus Christ, so stop and secondly, I only wish that I was so that I could stop all of the problems of the world, understand?”.    

This is something you can learn from and to teach others about what is going on in your head all day compared to others. Everybody knows what a Rubik’s Cube is, a 3-D combination puzzle invented in 1974 by a Hungarian sculptor and professor of architecture Erno Rubik, in which you have to get all six sides of different colors of the square together to an even and clean form, which some people say is an impossible game, but it is not so. There are literally 43 252 003 274 189 856 004 ways of solving the Rubik's Cube, so good luck. Now when you have figured that 3D combination out, compare that to the brain cells in a normal functioning brain. Take the Cube, scramble all the sides of the cube around in your hand to start the game over again and you now have the semi-functioning cells of an epileptic brain smacking into each other causing major problems that you need to figure out ways to control.

A Rubik’s Cube is a good puzzle for epileptics to keep their mind busy, put in control and away from things that trigger seizures from occurring. Once you figure that out you may be able to do things that you hadn’t thought before were possible keeping your mind straight. This is not something that you will hear from a neurologist because we need them for all of their studies and research.

And no neurologist will have any problem with you telling them what you do all day, what keeps you interested and busy. A hobby in life is one of the most important things to have. These are things they want you to do, how they want you to be and that you should be enjoying for a normal lifestyle. These stories are the stories that make them see that what they are doing is working for you too. If you can't share your life stories with them, either good or bad, how can a doctor help with anything that you may need them for!

And for an epileptic, that is alot!      

Try This for 2016!

It may change your life for the better, Forever!

This may be the greatest New Year’s resolution of your life, even though it's March. It is quite harsh and drastic but, if you choose as I have to stop your seizures from destroying the rest of your life, you may want to give it a shot. I can almost promise you that it does work. It has stopped many of my seizures from occurring, almost all!    

The #1 thing that causes the brain to go out of control especially for epileptics are Cell Phones. Put the cell phone down. Every time you put a cell phone over your ear you are losing the battle already. If you must, put the phone on speaker mode and keep in in front of you, away from your head. Your brain waves will act up like you are frying your brain cells while using a cell phone. The longer you are on your phone, whether close to your head or not, the closer you are to having a seizure. Looking at the screen of your smart phone 100 times a day or more causes the same. If you think that this is not true, talk to an epileptic because, although we have our problems, most of us like myself can see in our heads through our own eyes what is happening.

Never a good thing.

House phones however, even the wireless ones, do not ever come close to the effect of a cell phone. I have never dropped a house phone when on one nor have I ever had a problem using one either. A cell phone has a 100% chance of falling to the ground, sometimes taking you with it. The power of a cell phone can burn the brain and yet we wonder where brain cancer comes from. Not that brain cancer started when cell phones came into our lives but, it isn’t helping the the situation. The lights and flashes that we epileptics see everyday are ungodly, even through text messages. Most of us see flashes of light in our heads that others do not through our own eyes, yet difficult to figure out what it is we are seeing time and time again. This is something very common but, luckily, does not kill us once it stops.

Second to cell phones are laptops and office computers with giant monitors in our faces being stared at all day. Close the laptop or shut the computer off, give yourself a break, if it is allowed, time on your computer with more time off of your computer. I had a job for ten years behind a computer and just wished that someone would have given me a heads up on them as to what it might do. I had to stare into a monitor which I kept changing, keeping it further away from my face with screen covers on them as well and yet, nothing worked. Every year, working got worse, worse and worse for me. I just wish that I could go back in time to change what happened but, if it wasn’t going to happen there, it would have happened somewhere else. Although I never wanted to use a computer, my dream job had always been out on the field working as a carpenter or construction worker, and I do believe to this day that I would be better off then I am now.

Third after cell phones and computers are televisions. Do yourself a favor and just don’t turn them on, ever. This can be easy to do for yourself but, when you are living with a family it can become very difficult, yet if they have any feelings for you at all, will let you be and go into another room to turn the television on. Almost everyone has more than a few these days, it’s not the 50's anymore with a black and white television on wheels like a piece of furniture, although a black and white television would not cause such problems and, can be black and white if you choose to make any TV screen put on that way. Personally I cannot stand them and yet, I have every premium channel, go figure. It just makes it easier for someone else to watch something else somewhere else! With a large collection of DVD’s and Blu Rays just because.    

Forth on my list are eReaders. Reading off of a tablet such as Apple IPads, Samsung Galaxy S’, Barnes and Noble’s Nook or Amazon’s Kindle Fire; the most popular of these tablets to read off of. Every one of these tablets can cause the same as any of the above by staring into these colored screens for minutes or hours even of every day. Staring at these screens is more like, staring into the abyss of Epilepsy! So for that matter, put the tablet down and grab a book instead. An actual real page turning book which causes no problems while being stared at. It is easy to get to a local library or book store even and if not it is simple to buy one off of Amazon, eBay or Barnes and Noble on line. Anything that you want can be found. Even some libraries make pick-ups and deliveries. However, audio books are fine as well and cause no harm although are more expensive to purchase if wanted or needed. 

Fifth, store shopping, bright ones such as jewelry stores mostly but, these days every store will cause an epileptic problems. Not that you shouldn’t go but, try to keep yourself on a timed schedule, basically know what you want, find what you want, pay and get out. Strolling slowly all stores such as Macy's per say, like most people do on escalators and such will only cause you problems that you do not need! Would you like to go back to the store one day, for sure you do and will, so my best advise is to just get what you went for, pay and get out.

Sixth problem for epileptics and seizures is a big deal! Bigger then you may think.  Being driven around everyday from here to there can cause you problems, especially at night. During the day you only have the sun to worry about so put sunglasses on and done, but at night everything can and will affect you more from stoplights, street lights to break lights on cars in front of you but, mostly cars and trucks coming at you in on-coming lanes blinding you with their high beams on. Keep the sun visor down blocking the stoplights and your head turned down or away from on-coming cars. You do not want to have a seizure on the highway scaring the driver half to death or causing accidents. Personally, I have been pulled over to the side of the road many times by my wife, the side roads only though luckily for us both. Many nights leaving from one house to another I have had a seizure, then asking Michelle, “where are we”. “we haven’t even moved yet” she goes. Wearing your sunglasses at night is not a bad thing to do either, whatever keeps the lights on the road from causing you problems and protecting yourself and others, is a good thing to do.

So we understand now how to keep yourself well from seizures caused by cell phones, computers, televisions, tablets, shopping and every night out on the street and what to do about it!